BLOWN AWAY!

The night was filled with just this…Image

 

We truly were blown away when we walked into the “Let’s Fight Lyme” Benefit that our dear friends did for us.  It was a perfect evening filled with unexpressable (I’m not sure if that’s a word) words and joy!  Billy and I didn’t really know who or what to expect as everything was a “surprise”.  So seeing each person walk in took my breath away and I was filled with tears and joy inside.  The evening was filled with laughter, tons of delicious food, beautiful decorations and alot of lime green!  Most importantly I’ve never experienced the power and presence of the Lord at a social party like this.  Thank you everyone for allowing Him in and making Him center stage!  We were blown away by the coming together of community and love and how every little person and every dollar helps in ways you will never know.  So thankful my lifelong best friend, Heather was able to come for it as the out of town guest and be part of this incredible evening.  On the way, I said to Billy, “I wish I would have thought to get a photographer for this just to capture every moment,” Well good thing Courtney, Brit and Joy know me so well because we walked in and click, click, click…there was a tall man standing there with a gigantic camera shooting away!  Again, BLOWN AWAY!  The decorations, the food, the details, the sharing and praying over us again – BLOWN AWAY!  Honestly the pictures give the best description of the evening as it is so hard to express the joy, love, presence of God, community, and laughter and tears there was there!  Then we were BLOWN AWAY by the financial generosity of every person.  God is so good and He truly does provide!  Billy has such a heavy brick lifted off of his chest as we have been experiencing such an immense amount of financial stress through having this disease!  Every dollar helps and we are so beyond grateful!  THANK YOU THANK YOU THANK YOU!!  

These were all the volunteers that did everything – the food, the decor, set the mood, had a special spot during the event and LOVED!!

Image

 

Gotta Love the lyme and aqua nails that came to support as well! Image

There are tons more pictures on Facebook if you would like to look at them too at this link: 

http://www.facebook.com/media/set/?set=a.415057358541182.94433.100001107654736&type=1

Also, we want to thank everyone of you publicly who gave to our medical donations account.  You will never know the investment you have given to us.  We love you!  Please continue to pray for us as we have some big decisions that we need to make, some hard things we have to face!  Oh, I got my walker!  I LOVE LOVE LOVE it!! I ordered of course, an aqua one but the 1st website it was shipped then on back order, so we tried another website (Thanks Momma C) and they said it had shipped then got a call saying it was on back order so I gave in a little and we went and bought on at a medical supply store here!  It’s not aqua but it works and thanks to Heather as she helped me decorate it and make it mine!! Which we didn’t get a good picture of it so that will come!! It has been so helpful so on days when my joints hurt so bad I don’t have to walk as funny and I can sit when I need to and get support from it, also Elliana and Emersyn Rose can fit on the seat together!  So it is a walker/stroller!  PERFECT for us!  

I can’t remember if I mentioned this in my last post or not but we did get some blood results back and my count was significantly higher, which is a very very good thing!  We are so encouraged as that shows we are doing the right thing!  

Now I have 3 co-infections – Babesia, Bartonella and mycoplasma so we will really focus on those here too!  

Please pray for our girls!  We are doing more blood work on them in the next few weeks!  

PRAISES: 

1. We are going to Hilton Head with Billy’s family for the week! 

2. When we get back my sauna will be here!  Again thank you for helping us get this!  I cannot wait! 

3. God is our HEALER!  He is healing my body!  Still not there yet but soon and very soon! 

I have talked to a few other people that have been diagnosed with LD and feel very encouraged as several of them had tried everything and it seems that what we are doing is the best choice for chronic lyme disease!  

Thanks for all your love, support and continued prayers! 

Filled with a very happy and heavy heart, Ann 

P.S. The logo at the top of the blog is the logo that we have decided on and we are so happy and thankful to Amanda Sutt!  Also, we showed the trailer at the benefit and we will be putting in on here later today too! 

 

 

Advertisements

So excited!

Well I have had the joy of talking with 3 specific women lately that have had great success with alternative treatment for lyme disease.  And one of them just got cured!  PRAISE THE LORD!!  I am thrilled and again filled with such HOPE!  All three of them have used a sauna along with a few other treatments that I am starting or have been doing.  So I am so excited to get one here at the house so I can use it more to heal quickly and more effectively!  We are also so excited about this celebration/benefit on Saturday that my dear friends are hosting!  As much as I want to be planning it with them but for someone else I am forever grateful for all they are doing and for actually being able to see community and family come together for a good cause!  

I have been having some really good days, with good energy and then just awful joint pain in the evenings and then some days in pain all day but good energy and others no energy, 100% fatigued, shortness of breath, eye issues, memory issues and joint pain!  It is such a crazy and interesting disease!  For sure keeps us on our toes (or off)!  We ordered a walker on wheels so I can get around better and yes it is AQUA! I am excited to get it so I can get around easier and take the girls to the park again, go walk around the mall, take walks in our neighborhood and be able to sit and stop when I need to!  

I think one of the hardest things for all of you is really understanding lyme.  Many people have asked things like –

It seems like you aren’t getting better, do you think what you are doing is working? 

or

You look just great, you must be having a good day, huh? 

Sometimes I just keep my mouth closed as to how I am feeling because sometimes I can’t even focus on how I really am feeling.  I just strive to be the best mom, wife and friend I can be while dealing with all my body is going through.  On the inside there is almost always sometime going on that is not what a normal, healthy body does.  But alot of it I guess I have gotten used to and try to fight it off or even try to ignore it by keeping busy or being distracted.  I’ve tried the whole staying in bed or on the couch and that doesn’t really make it better.  There are days that I just can’t get out of bed but those are becoming fewer and fewer and for that I am grateful!  We have to remember this disease isn’t a quick fix kind of thing as much as we all would like that, I am learning patience in a whole new way and sometimes a quick fix isn’t the best fix for us.  

There are alot of prayer requests that we are dealing with that I will leave unspoken for now and hope to be able to share them with you all soon!  Thanks again for your constant love, prayers and support!  

P.S. unless you have told me you are coming to the Benefit I don’t know who is on the list and I know it will be an emotional evening for me so please forgive me if I just can’t stop crying!  It is coming from my heart full of pure joy and happiness!  We have been touched by so many of you in so many ways and we hope to touch your life in more ways than you can imagine!! 

Lots of love, Ann 

Well my girls a…

Image

Well my girls absolutely LOVE the motorized wheelchair at Costco!  Let’s just say they wanted to drive it all over the place…luckily we didn’t hit anyone but came close several times!  I didn’t think they would be difficult to drive but we had a few adventures!! Maybe it was Elliana driving throughout the whole warehouse and not paying any attention of anyone else crossing the aisles at the same time!  Oh well…it was a memory thats for sure!  

It’s interesting talking to people when they see pictures of you in a wheelchair…I enjoy pictures and being able to see the memory; often thought of being a photographer or enjoyed the thought of it but didn’t pursue it and I’m fine with that yet love capturing everything!  I often said several times in life I wish I had a photographer following us 24/7, taking candid shots throughout everyday, every big detail of life and even when nothing was going on just so I could hold on to that memory even more.  Memory of just sitting watching our girls dance, giggle, and experiencing life the way you do as a child!  My dad mentioned that he just broke down when he actually saw me in a wheelchair along with my Uncle Nelson…yes it is hard for me at times too and not easy when you have 2 children you are trying to keep track of in an area other than your home; however I am thankful that I can have one to keep going rather than feeling trapped at home.  Hopefully it won’t be long term and I know God will heal me one day but it’s not time yet…He has many other plans first and I am excited!  Now don’t get me wrong there are times that I shout to the Lord asking Him when is this going to end and when will I be healed and I cry and I am angry…its called grieving and we are allowed to do that and need to do that regarding any situation or trial we all go through!  We are human right?  All I want to do is be able to run (or walk) my girls to the park and play and yet I can’t right now, so is it a constant struggle?—YES! But do I believe in a God who can heal me, who is as ABLE, who is LIMITLESS (thanks Jordan Sharrett for your message last week) He will one day!! 

What is your battle?  We all have a battle we have to fight through, pray through, grow in strength and persevere through…no matter if it is health or a job or finances or having a child, we all have them!  Yet, why fear..why worry…does it do any good- absolutely not and I pray that I will continue to not let fear or worry win me over- that is from the enemy and He is not gonna win!  I am fighter and all of you surrounding me, fighting and praying with me I thank you!  I/We can’t do it alone and we are so grateful for all of you!  

So where are we now:  

1. Praise the Lord the only mold we had was in our air vents so we have to get those cleaned out but we don’t have any other big issues with our house and don’t have to even think about moving!  I would have been crushed…we love our neighbors and this place way too much! 🙂 

2. Symptoms for me: a new one is vision issues…a lot of lyme patients get this and I hadn’t yet so I was hoping it wouldn’t come but just have fogginess sometimes even with my contacts/glasses!  Still intense joint pain, muscle pain, shortness of breath, headaches, sleeping problems, memory fogs, nausea, intense fatigue and no energy some days I can’t even lift my head…the hardest days are honestly the ones filled with fatigue and pain…that equals debilitation!  I can handle the pain and push through it like you can when you are in labor but when you have the fatigue plus that it makes it much more difficult and the best way to fight it is to listen to your body – and just be still!  

We are surviving and having days that are close to normal, others very far from what we imagined normal being but still filled with JOY and LOVE and THANKFULNESS even when we can hardly breath – just gives us a whole new appreciation for each breath and step we take each day.  Even though it is extremely hard to go through this while raising our 2 daughters they have been amazing through it!  They sense what is going on and my sweet Elliana doesn’t want to leave my side!  She is encouraging and tells me that if I eat broccoli and a popsicle then I will feel better.  She said she doesn’t want to go to anymore camps this summer so she can stay home to be with me and help me.  She is just so precious.  Emersyn just makes me giggle!  She makes everyone giggle I think!  She just does!  If you know her and have been around her you know what I mean!  I don’t know how I could get through this without them to keep me on my toes, keep me going, coming to wake me up every morning to play and start our day and to show me a pure and true child-like faith that God wants us to have.  

Thank you to those of you who continually show your love to our family through this valley!  We are growing stronger together as a family and community and we can’t say thank you enough for those of you who have given so generously to help us, brought us meals to give my sweet husband a break, helped with the girls, and your continued prayers and cards to encourage us!  

Hugs to you all, Ann