We finally got a diagnosis…Thank you God! You know when you have been searching for an answer or saving for something and it isn’t really what you had in mind? We have these exact feelings – we rejoice, we cry, we ask why, we research, we wonder, we fear the unknown, and we feel blessed all at once. This blog will be to help educate, keep you posted on my health and our hopes and plans for what God wants us to do with this.
Thanks for your support,
Billy and Ann Clark
My Daily Health Blog
Diagnosed March 28th at Progressive Medical Center with Dr. Burdette
We have been a little disturbed with all the research we have found with Lyme Disease…very political and controversial. We keep digging deeper and deeper with all the information, treatments, etc. It is all very complicated and so individualized it is hard to really grasp everything. The treatment we have decided to try first is called MAH Oxidative Therapy. We are doing 5 IV treatments along with the RIFE machine, matrix and ozone sauna.
There has been a lot of different emotions we have been facing –
- So thankful that we finally received a diagnosis
- Feeling like we are going to have a battle with this disease
- Fear of the unknown and how my body will take on this disease, the treatments and deciding how to treat it, fear of what I will not be able to do on some days
- Praising the Lord again it is not a disease/illness that will take my life very shortly
We watched UNDER OUR SKIN Documentary Friday pm and had an emotional train wreck right after it was over. I wept and sobbed, then wanted to punch everything in sight, then wanted to go run 10 miles, then wept some more and fell on my knees in prayer…laying everything at the Lords feet.
1st MAH Treatment along with Matrix and RIFE machine
Going into the IV room really hit me that wow this is real, here I sit with all other sort of people with cancer or another disease. I had a very PEACEFUL feel yet disturbed feeling that this was really happening to me. They took my blood and the 3 nurses and Billy all noticed at different times how dark my blood was (like red wine) which means not a lot of oxygen. So that made me say, “Hey good thing I am doing this then since they put ozone into my blood and then put it back into my body. I felt nauseas before and after it was over and had no energy afterwards. I then went straight to Dr. Mike and he gave me 2 Matrix treatments and then put me on the RIFE machine doing all 3 lyme programs. It was A LOT but felt very good and at peace.
4/3 Had no pain this am and once I got going lots of energy. Went to Town Center with girls and played in the fountains. Came home and still felt great. Ate lunch (sheeps cheese, gf chips, apple with lemonade)
Got very very tired and almost fell asleep on the sofa but my sweet Elliana woke me up
2-3:00pm Had some knee, neck, arm and finger pain
Felt good the rest of the day
4/4 Got up and ate egg/daiya wrap. Started having pain first thing but went to Target anyway with girls and mom to get Easter basket stuff. Was moving very slow at Target. On the way home I just didn’t feel right and I pulled over and had mom drive us home. Felt very tingling, out of it, tired, just weird. My head, ears, legs all hurt. Mom left about 1:30 and I started to feel better around 3ish
4/5 Duggers came over for a playdate and we had a ball. Had no pain most of the day, got some hip pain at 1:30 and then after everyone had left, Emersyn was sleeping my body started hurting all over. The pain went from muscle aches in my legs, hip pains, intense finger and hand pain, tingles in my arms and legs, teeth ache, chest pain, joint pain in my elbows, shoulders and ankles. It continued getting worse from around 5 to 8ish. The pain was enough to make me cry, which I did a little but didn’t want the girls to see me…didn’t work, Elliana came over and asked me why I was crying. She is so sweet but I know she doesn’t understand all that is going on and so I am really praying about how to tell her what mommy has wrong with her at her level. This is not for the birds, man oh man pain all over your body is not fun. It is hard for me to walk today.
4/6 Got up and in a lot of pain, didn’t think I should drive so all 4 of us went to my treatment…I did the RIFE machine and then the sauna for about 20 minutes. Came home and had NO ENERGY. I took a 2 hour nap. Felt a little better after I woke up and cleaned a little, got ready and we all went to church. I sat in pain a lot of the service but it was very uplifting and felt better as the night went on. Had more energy and not much pain.
4/7 Got up and felt very stiff and tired. Pain didn’t seem to come. Went to River Club Easter Egg Hunt with Tammy and Joy and the kids had a blast. They had pony rides, animals to pet, Easter Bunny, egg hunt, games, snacks…kids had a blast and I felt really good. Ankle and legs hurt around 11:00 but was able to keep going. Had a salad there and came home. Was tired but probably the best day pain wise for the past 4 days.
4/8 HAPPY EASTER!! Woke up and God is so GOOD and so FAITHFUL! I felt great the whole day! Went to my parents to celebrate and truly enjoyed the entire day. Was careful with what I ate all day, I had energy and truly felt good.
4/9 Had my 2nd set of IV Oxidative Therapy and got to do the sauna for about 20 minutes before. Had my mom drive me as I usually don’t feel good enough to drive just because it is a lot physically, mentally and emotionally…just wipes me out. Am doing better with each one it seems and my body is hopefully responding to this treatment.
4/10 -4/12 Got a bit behind on my blog but that usually is a good thing. Means I am able to get out and do somethings and not be in a lot of pain…PRAISE THE LORD!
4/13 4/14Had a good day, then had a Matilda Jane party that evening and started hurting bad around 8ish. Had a hard time walking and did not sleep hardly at all. Stayed at Clarks all weekend since Jason & Amanda and Amy were all in town. Woke up very stiff, tight muscles and moving very slow. It didn’t get better but worse today. I had alot of distractions with all four girls being together and all the adults hanging out but still in much pain. Mainly my legs- nerves, muscles, bones, just everything hurt. Amanda was very sweet and massaged my legs which helped the muscle aches. I feel so blessed to have some really supportive and loving people walking through this with me. I know not everyone understands and doesn’t know a lot about Lyme Disease (we didnt either and are still learning) but I now have experienced what true friends are -sticking by you through good and bad, helping you even when you don’t want help, and knowing there are some special people in your life that can just look at you and sense your pain or know exactly what you need. Thank you for that dear loved ones – you know who you are! I experienced a lot this weekend as this becomes more debilitating it also becomes more obvious to the eye – meaning people who aren’t around me everyday don’t see all that Lyme is doing in my body. This is hard for me because I don’t want extra attention, I don’t want people to feel sorry for me, I don’t want people to think I am faking it and when you can’t walk right due to the pain you can’t really “hide” it. But then the pain may ease and move somewhere else in my body and then I can walk. Yet through it all I never fail to learn something God is trying to teach me each day.
4/15 I woke up feeling bad arthritis in my hands and feet and very stiff. Billy let me sleep in to try to help my body rest and fight…it felt great to sleep till 9:30. I felt better than I did yesterday and I think my face showed it as Billy’s mom said I can see in your eyes you are feeling a little better. We were able to watch the episode that Dr. Phil had on Friday about Lyme Disease. I think it gave everyone an idea of what this disease is and can do, which was eye opening. We had small group and it was such a blessing. I woke up feeling that I didn’t want to take time away from everyone else or our study but Brit (gosh I love her) kept pushing me saying this is part of life and part of having a small group to support and love each other through what they are dealing with. So I texted Mark and he said take the whole time. Billy and I were able to show some of “Under our Skin” and talk a little bit about Lyme and where we are and what we have decided as far as treatment for now. It was a time of initial shock, understanding what Lyme is, grieving, praying and loving. We feel so honored and so blessed to have such an incredible support system walking this battle with us. We love you guys so very much!
4/18 Went this morning for my 3rd MAH IV Treatment and it was crowded this morning. I usually go on Mondays but couldn’t this week. I sat there watching everyone, feeling just YUCK! I did my best to not break down and held back my tears as I had so many emotions running through me – feeling so thankful for doctors who want to help me and who are working with me, feeling so sad about how many sick people there are in this world and lastly just grateful to God that this is not our “home” My IV went well and I am feeling very good so far.
Thanks for all your prayers and your care!
I hope to add a post each day but sometimes it just doesn’t happen! Sorry this isnt a very fun blog with lots of cute pictures, I will add some at times!